As you know I went on a camping/hiking trip to Colorado in June/July. A week or two later I got sick. Sick enough that I actually called my family doctor which is something I’ve never done before. My doctor couldn’t figure it out and set me on my merry way with antibiotics that made my face swell like a puff fish. I wasn’t getting any better and went in again to see my doctor a week later. I basically started self-diagnosing myself. I pointed out a few things she ignored the first time and made a couple of suggestions. I also asked to be tested for Lyme disease since I had been in Colorado for a while.
A few days later, a nurse called me with my lab results. We figured out what I had and she said the Lyme disease test results were negative.
I got better fairly quickly after that and forgot about the Lyme thing.
A couple of weeks later I get a phone call out of the blue from another nurse saying I had Lyme disease. They said they would make me an appointment with a specialist.
I hung up and of course I get online to start researching Lyme disease. I was already pretty familiar with how serious this disease can get. I was trying not to freak out because a month had already gone by. Time is pretty important for something like this. The earlier you get treated the less likely you’ll get the life-long nasty stuff Lyme disease can cause.
A week goes by and I hadn’t heard back as to if an appointment had been scheduled so I called the doctor’s office again. They apparently decided to make an appointment with a different specialist instead and told me to call back in a week. I also tried to get them to clarify the whole lab test results. One nurse said there was some confusion and another one said the test was pending when they originally told me it was negative.
Well erhmm…shouldn’t you have told me it was pending instead of making an assumption?
I called back in a few days insisting I get an appointment asap because of the whole time thing.
They finally scheduled me an appointment for 3 weeks later. There was no way I could get in any sooner. The appointment was yesterday (it was actually supposed to be the 14th but they had a last minute opening).
So, I went to the appointment with the infectious disease specialist that happened to be in the senior clinic at a hospital. I felt a bit….out of place there.
It never fails.
1) It took 5 minutes for the nurse to understand that I was deaf and NOT the interpreter. Not sure why she was so confused.
2) I had to explain that I was pretty sure I was born deaf and it wasn’t due to Lyme disease…because yeah…I have never been able to hear.
3) I got called a deaf-mute. C’mon…it’s 2009…get with the times and be a bit more politically correct please. Deaf-mute is an offensive term, but I ignored it. I did give him credit for not calling me deaf-dumb.
Overall, the staff was nice and didn’t brush my concerns off like some medical professionals do when they realize I’m deaf.
Back to the Lyme disease. At this point it’s been more than 2 months and I’m a bit ticked (no pun intended…well maybe…lol) it’s taken this long. I’ve just been really concerned about getting access to treatment in time.
Turns out, the infectious specialist doesn’t think I have Lyme disease. He thinks there was just some confusion in interpreting the lab results. He did draw 4 tubes of blood to retest and I should find out Monday for sure. Hopefully this whole thing will come to an end Monday.
I feel like yet another victim of miscommunication and lab test confusion within the medicine world.