Well, I have had my CI for about a week now. It’s been a wild ride so far. Just thought I would give a follow-up as to how I’ve been feeling since it’s been almost a month since surgery.
It’s been about 3 and half weeks (will be a month on Thursday). The incision has healed really nicely and I am very pleased with it. The numbness I had in my lip from the breathing tube finally went away a few days ago.
I have a little bump behind my ear that seems to slowly be going away. At this rate it should be gone in a few days. It’s a bit annoying because it bothers me whenever I wear the processor and it rubs against the processor. I’m not quite sure what caused the bump, fluid, maybe? It was just odd because it kept changing in shape, size, and location.
I still have some stiffness that usually just bothers me whenever I try to open my mouth to take a large bite of something. Hopefully that will go away with time.
It’s definitely going to be one long journey. I have my next mapping Tuesday and I’m not quite sure how that will go. I’m already dreading one part of the mapping. Let me explain that my CI is hooked up to a computer and I let the audiologist know whenever I hear something. During this part I cannot hear anything else except the beep/tone/whatever it is (at this point it’s still a sort of sensation). This can take anywhere from half-an-hour to a couple of hours. Then she switches me back to live mode where I can hear everything in the room.
I. Hate. That. Part.
It’s when I’m bombarded with all these sounds that are extremely loud and is very difficult to tolerate. I also really have to fight the urge to just take the CI off and throw it across the room. The first 30 seconds is just the worst feeling. It’s a mental battle with myself to just get through those few initial seconds while not having any physical reactions. It’s hard to explain. It’s almost like my body responses to it as something that’s going “wrong” or is a danger so it goes into defense mode thinking that I need to fight something off (adrenaline rush, “fight-or-flight” response).
It’s amazing how loud that room is. Seriously. I mean, logically, I know it’s extremely quiet because no one’s talking, the door is closed, and my audiologist takes care to be sure there aren’t any unnecessary noise going on at that moment. I do wonder if there’s a sort of constant noise (the AC, fan, ??) because there’s this constant noise even when no one’s talking.
I don’t mean to keep pointing out all the negatives even though that’s all there is right now, lol. It’s just that it seems like people in general want to ignore all the negatives so I’m just trying to be honest here. However, I would think that for someone with my background there would be more negatives at first before things get a bit better. This is different compared with a baby, someone who has progressive hearing loss, or a late-deafened adult going through the CI process. Sometimes things have to get worse before they get better. I am committed to this and I will figure out a way to utilize the CI in a way that will benefit me.
My brain just needs to rewire itself. How well will my brain rewire itself? No one knows.